My Family

My Family
3 kids with CF

Friday, November 4, 2011


I am doing the Facebook thing and posting what I am thankful for every day in November. It is SO hard. Not because I am not thankful for anything. The truth is, I am thankful for EVERYTHING. I spend most of my day being thankful. About a month ago, we were told that Michael's disease is progressing faster than they thought, the bacteria in his lungs is slowly taking over and it isn't resistant to anything anymore. Meaning, the only thing that is going to save him is a double lung transplant and we need to think about doing it NOW. His life expectancy has gone from 4-5 years to 2. As you can imagine, we were devastated. Why am I putting this all in a blog about being thankful? When you hear those words, "You're child has 2 years to live," all of a sudden, life is put into perspective and trivial things don't matter so much anymore. So, I am thankful for EVERY LITTLE THING. I am thankful that we have the hope of a transplant, the advancements in medical technology that may save his life, good insurance, and the fact that we are moving forward towards a cure. But what am I most thankful for? Cystic Fibrosis. Yes, you read that right. I am thankful for Cystic Fibrosis. If my kids didn't have it, I might take things for granted. I might not take EVERY opportunity to show them how much they are loved, I might get a little more angry when they make mistakes, I might not be as patient with them, I might not think about how much time I have with them, I may not ever realize how truly blessed I am. My children have taught me how fragile life really is and how important it is to live in the moment and love without reserve. For that, I am beyond thankful.

1 comment:

  1. You are true Angel. Reading what you have too go through every day with your children, Has taught me to be greatful and more loving towards mine and appreciate everyday even the bad ones. My heartaches that your sweet children have to go through this. I am praying for you and sending lots of hugs.