My Family

My Family
3 kids with CF

Sunday, February 20, 2011

Back in

Michael is in the hospital again. This time his port got infected and had an abcess underneath and above it. He had to have the old port removed and a drain placed to help the abcess heal. Also, while he was in, his jg tube broke and had to be replaced. They were able to replace the tube with no anesthesia, which is wonderful. Every time he has to be put under, I worry. His lungs are so fragile that sometimes he has trouble coming out of the anesthesia. Last time, they had to bag him for 10 minutes. It scares me so much! The surgeons had to put him under to remove his port and everything went smoothly. He had the drain removed on Wednesday and now we wait a week before they can put a new port in. I hate this disease more and more with each passing day!! Every time I hear of a young person dying from it, watching it rob my children of their childhood and force them to be wise beyond their years, watching it steal my son's breath and make him cough until he's blue, watching them lay in the hospital during birthdays, Halloween, Valentine's Day and other events. I am tired of the sadness, the fear, the anxiety, watching them be in pain, the helplessness and hopelessness, the uncertainty, and the time it slowly steals from us. It is such an emotional roller coaster and I'd like to get off now, please??


  1. I will pray for you and your kids. You know it takes a very very Special Mom and Dad to be able to take care of a children with serious illness. You and Michael are wonderful parents.Sorry to hear that your son is in the hospital again.. I will keep him in my prayers.

  2. You are all in our thoughts, I hope the port insertion goes smoothly, he was okay having it removed so I remain hopeful he will be having one put back in.
    Ports are wonderful but when they go bad they often do it in style.

    I LOVE your new header picture also. Take care and I didn't get chance to wish you congratulations on your latest pregnancy, I sure hope all is going well and you are feeling okay?